posted : Wed, August 06, 2008 at 19:52
Neocate
My son was in Childrens Hospital at 2 months old for 10 days. We got tired of hearing the same old story, "Its just Reflux". We tried 6 diffrent Formulas, and he cried 20 hours a day, seriously. I couldnt take it anymore, and neither could he. So finally they admitted Him into Childrens Hospital, Detroit. At first they put a Probe down His nose for 24 hours to see if it was Reflux. That came back NEGATIVE, and they wanted to send Me back Home with Him on Prilosec!! I said absolutly NOT! Until you find out why Hes in pain and crying, I WILL NOT LEAVE! So then they did another test. They put Him to sleep, and put a Scope down his throat and BINGO! Stomach Ulcers all over from Formula. Had I gone Home, Hed still be very miserable today. So then they put Him on Neocate. He would not eat it for nothing! They said if I didnt get 22 Ounces in Him within 2 days, they were sending Him Home on a feeding tube until He got used to it. I tried and tried, nothing. Finally, I let Him get really hungry, I know sounds mean, but it worked. He was so hungry, I let Him go for about 7 hours without eating(in the Hospital, so they Oked this) and after the 7 Hours, gave Him the Neocate and he sucked down 6 ounces . He was only 2 months old. It still took a while to get Him use to it at Home, but I just kept pushing and letting Him get hungrier, and now He loves it!
Hes 6 months old Today. He still doesnt sleep at night, but there has been a major change! I no longer give Him Prilosec or Reglan either, the side affects were bad and he cried more with the meds. Now He just got 2 Teeth, so Hes teething, the crying hasnt stopped, LOL, but Hes so much a happier Baby.
WIC does give us 9 cans, but Hes going threw 12. So it really sucks, at 34.00 a can, but He needs it. And YES, the thick spit up happens often and the smell is not that bad, I think Similac Alimentum was worse.
Im really glad I found this, No one else has ever heard of Neocate. It was very hard to Order at first, no Pharmacy understood or heard of it and the Hospital only sent Me Home with 2 days supply. Its been a nightmare, but things are getting better! [:)]